End of Life

 

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Introduction

Important Issues in the
   Care of the Dying

Your “Job” in the Death and
   Dying Process

Hierarchy of the Dying
   Person’s Needs

Living with Spiritual Distress

Overview on Death from a
   Traditional Jewish Perspective

The Role of Culture and Diversity

Signs of Impending Death

Resources

Action Ideas That Work

“Real” Intersection of Systems

Helping Individuals Face Important
   Decisions at the End of Life

Questions That are Good    Conversation Starters

Common Questions and Answers

Advance Care Planning

Advance Health Care Directive

Living Will

Durable Power of Attorney for
    Health Affairs

Hospice Care

Helping Survivors Deal With Grief

Questions and Answers About
    Health Care Directives

Handouts

References

Helping Survivors Deal With Grief

There are several ways that congregational nurses can help surivors though their grief processxiv:

  1. Be present, use active listening, and touch – and recognize when a silent presence is most important
  2. Describe the normal grief process and what to expect
  3. Support their need for ritual, a memorial or funeral service, and traditions
  4. Acknowledge and validate their relationship to the deceased\
  5. Identify support systems
  6. Help them connect to bereavement specialists, support groups, and other resources
  7. Actualize their loss, and help them envision living without the deceased
  8. Provide a means for them to identify and express feelings
  9. Bring out life review when appropriate, using photos, journals, music and art
  10. Offer spitirual support and referrals
  11. Respect and encourage use of cultural practices, rituals and traditions
  12. Encourage healthy coping mechanisms, such as social support, exercise, proper nutrition, and rest

Helpful and unhelpful comments in speaking to the bereaved includexv:

Unhelpful Comments Helpful Comments
I know exactly how you are feeling I am sorry that you are going through this painful process
I can imagine how you are feeling It must be hard to accept that this has happened
I understand how you are feeling It is okay to grieve and be really angry with God and anyone else
I’m always here for you, call me if you need anything I can bring dinner over either Tuesday or Friday – which will be better for you
You should be over this by now, it’s time you moved on Griveing takes time – don’t feel pushed to hurry through it
You are so lucky that you had so many years together I did not know _____, will you tell me about him
At least you have your children It’s not your fault, you did everything you could do
You’re young, you’ll meet someone else What’s the most scary part about facing the future without _____
At least her suffering is over, she is in a better place right now You will never forget ______, will you
He lived a really long an full life It’s not easy for you, is it – tell me what you miss the most
How old was he He meant a lot to you

Children, in particular have special issues as they grieve. Three prominent themes emergexvi:

  1. Did I cause the death to happen? Children often engage in magical thinking, believing they have special powers. Often, it’s not unusual for a child to think, “I wish you were dead” when they have been scolded by a mother, or if they have argued with a sibling. If the mother or sibling were to die, and child may thing that her thoughts actually caused the death.
  2. Is it going to happen to me? The death of someone close, especially if it is another child, makes it difficult for a young person to accept. If the child thinks that the death might have been prevented, he may think that he could also easily die.
  3. Who is going to take care of me? Children rely on parents and older adults in order to feel safe and secure. When a child is grieving and adult who has been close to her, she may wonder who will take care of her now.

There are special ways to help children cope with death, includingxvii:

  • Read the child the book, “The Fall of Freddie the Leaf” by Leo Buscaglia
  • Do not be afraid to ask their very direct questions with direct answers
  • You can explain that there are only three reasons why people die: they are 1) very, very, very sick; 2) very, very, very old; or, 3) very, very very hurt
  • Use simple and truthful answers and questions, and use direct language – words like “death” and “died” rather than “passed on” or “gone to the Lord”
  • Discuss religion in simple terms, too. Avoid saying, “God took your dad to heaven to be with Him”, because this can create fear for the child that he might be taken, too.
  • Do not compare death to sleep, which also creates fears
  • Tell the child what she can expect during the dying process, the funeral, and other rituals
  • Help the child create a memory book, using drawings, pictures, collages, written memories, etc.