End of Life

 

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Introduction

Important Issues in the
   Care of the Dying

Your “Job” in the Death and
   Dying Process

Hierarchy of the Dying
   Person’s Needs

Living with Spiritual Distress

Overview on Death from a
   Traditional Jewish Perspective

The Role of Culture and Diversity

Signs of Impending Death

Resources

Action Ideas That Work

“Real” Intersection of Systems

Helping Individuals Face Important
   Decisions at the End of Life

Questions That are Good    Conversation Starters

Common Questions and Answers

Advance Care Planning

Advance Health Care Directive

Living Will

Durable Power of Attorney for
    Health Affairs

Hospice Care

Helping Survivors Deal With Grief

Questions and Answers About
    Health Care Directives

Handouts

References

“Real” Intersection of Systems

Jack had been diagnosed with cancer of the prostate a couple years ago, but his health had deteriorated in the last year. His parish nurse had met with the family several times to discuss what they could expect from the chemotherapy treatments, and later how they could prepare for the impending death that became certain as time wore on. She explained the “Five Wishes” advanced directive form and answered their questions about the types of medical interventions that are sometimes done at end of life. She suggested books such as “Final Gifts”, and encouraged Jack to meet regularly with his minister to discuss his fears and hopes for his life and death. Together, Jack and his minister were able to plan his funeral and discuss many of the feelings he felt uneasy about. Acknowledging the broad effect that dying has on the whole family, the minister and parish nurse did joint visits to the family in their home.

As Jack became weaker, his family doctor arranged for hospice to become involved with the family and help ease any pain that Jack was experiencing. The hospice nurses were able to talk to Jack and his family in a way that made death less fearful and mysterious. They carefully managed the pain medications so that Jack was not in pain and was always as comfortable as he could be. Family members were encouraged to ask lots of questions and discuss their own feelings about death and dying. Hospice volunteers can in to sit with Jack so the family could take time away from the bedside. The church’s care team ministry came in once a week to play cards with Jack, help his wife with housework and meal preparation, and generally provide some respite care.

Jack passed away quietly in October. He was able to remain at home and the family was at his side when he died as he had planned. The minister was called and prayers were said to give comfort to the family. The family sang songs, recited Jack’s favorite poems, and play the big band music that he loved so much. They were able to spend time with him after the death and to both mourn and share laughter as they reflected on his life.

The congregational nurse can promote a seamless transition between institutions/settings and services.

Interdisciplinary approach:
Physicians
Nurses
psychologists
pharmacists
pastoral caregivers
social workers
volunteers
family members
physical therapist
spiritual care counselor
expressive arts therapist

Inter-institutional and community resources
Hospitals
home care
hospice
long-term care
adult day services