End of Life

 

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Introduction

Important Issues in the
   Care of the Dying

Your “Job” in the Death and
   Dying Process

Hierarchy of the Dying
   Person’s Needs

Living with Spiritual Distress

Overview on Death from a
   Traditional Jewish Perspective

The Role of Culture and Diversity

Signs of Impending Death

Resources

Action Ideas That Work

“Real” Intersection of Systems

Helping Individuals Face Important
   Decisions at the End of Life

Questions That are Good    Conversation Starters

Common Questions and Answers

Advance Care Planning

Advance Health Care Directive

Living Will

Durable Power of Attorney for
    Health Affairs

Hospice Care

Helping Survivors Deal With Grief

Questions and Answers About
    Health Care Directives

Handouts

References

Your “Job” in the Death and Dying Process

Individuals and their loved ones accept death in different ways, in different “places”. As a result, congregational nurses often can find that their job is geared towards giving emotional support and spiritual guidance. An important part of this is to help make sure that it is a time of growth and enrichment for everyone involved, so that they can come to an understanding and acceptance of death. Your caring and compassion can bring individuals to experiencing death as a spiritual process instead of a terrifying journey.

As a congregational nurse, you will hold a special ability to help others positively reflect on the end of life. You can help individuals gain a stronger personal meaning, and connect to a deeper spiritual. This will help them work through the difficult topic of their imminent deaths. It doesn’t mean that they won’t be angry, and depressed, and overwhelmed. But, by knowing that death is part of a journey to another, better place, they are more likely to accept it and work through it. And, you have an important role in the process.

Many sources describe death as a “journey to be undertaken”. To help individuals successfully manage this journey, you have to:

  • Accept the mortality of others and yourself
  • Be able to experience and conceptualize suffering and loss
  • Understand and explain disease and illness in plain terms
  • Exercise wisdom and empathy in making decisions and beginning discussions
  • Reflect on and accept the richness, pressures and limitations in caring for those at the end of life
  • Be sensitive to preferred communication styles, family dynamics, decision making, interpersonal tensions and level of suffering
  • Help individuals navigate complex ethical issues, based on human dignity and compassionate care
  • Appreciate the substantial physical, emotional and economic demands placed on families caring for someone at home, as they attempt to be a good caregiver and meet their own personal needs

It is important for the congregational nurse to appreciate that dying, while a normal process, is a critical period in the life of the patient and family. According to the Last Acts Partnership, an organization that advocates for quality end-of-life carei, you can respond to the associated human suffering, and also bring about personal growth for the dying and the family. Physical comfort, a sense of independence, and psychological support are most important at the end of life. Specific activities that congregational nurses support include:

  • Alleviate isolation by developing ongoing communication and sustaining relationships with dying individuals and their loved ones
  • Assist individuals in conducting a life review
  • Extend support beyond the lifespan of the patient to assist the family in its bereavement
  • Provide information and connections to concrete caregiver supportive services such as respite, round-the-clock availability of expert advice and support by telephone, grief counseling, personal care assistance and referral to community resources (e.g., home care, hospice care, pain management experts, spiritual support)
  • Explain end-of-life choices, and help individual put their end of life choices on paper
  • Open discussion about health care directives, and provide access to resources on this issue
  • Improve communication between the dying individual, loved ones, care givers and medical professionals